Comments on: Senator Kennedy’s Brain Tumor: Dr. Raj Explains What It Means

By: Linda

Linda — Tue, 20 Oct 2009 23:02:37 +0000

My brother had glioblastoma multiforme and only lived 5 months. He had severe headaches for over 2 years prior but would not go to the doctor’s. Only went to the hospital when he had a seizure and they discovered the first tumor. It was removed surgically and another grew back within 6 weeks. That was removed and a 3rd one grew back within another 6 weeks. His pride and denial kept him from seeking other alternatives. Very sad that he lived less than 4 months after his first surgery. His chemo/radiation nearly burned him alive and helped to kill him, I believe. Glad my mom is blind and could not see the damage to his body. Died 3 days before his 62nd birthday – never got his social security. What a life for a former Vietnam vet – semper fi.

By: Sheri white

Sheri white — Sun, 30 Aug 2009 03:23:57 +0000

My mother had the glioblastoma multiforme and had two surgeries (the second one) just to make it til her first grandson was born. She lived for 51/2 months after he was born. It was radiated and surgically treated. Now they treatments like cyberknife and implants that maybe could have saved her. S. White

By: Nancy

Nancy — Thu, 27 Aug 2009 14:44:17 +0000

Cathy, I am so glad to hear that you are a success story! I’m talking more about grade IV Glioblastoma Multiforme. Regardless, money and resources still need to be focused on gliomas. We need to get the word out and I glad you are around to help.

By: cathy

cathy — Thu, 27 Aug 2009 14:36:40 +0000

I was diagnosed with a grade 3/4 astrosytoma 11 years ago, after surgery and glidial wafer implants I am still here. It’s not alwways a death sentence.

By: ash mackinnon

ash mackinnon — Thu, 27 Aug 2009 03:49:33 +0000

Sorry forgot the link:
http://www.facebook.com/home.php?#/group.php?gid=43255564285&ref=share

By: ash mackinnon

ash mackinnon — Thu, 27 Aug 2009 03:48:56 +0000

Our Australian support site for Cyberknife (even though we dont even have it yet!!!)
Many people are accessing it overseas at startling results

By: ash mackinnon

ash mackinnon — Thu, 27 Aug 2009 03:47:04 +0000

What about Cyberknife as a non invasive treatment?

By: joni.

joni. — Wed, 26 Aug 2009 23:48:51 +0000

Sadly, I believe we will be seeing more gilomas and brain cancer due to cell phone usage. You can turn the cell phone off or use hollow tube headset.
I have a blog @emfreview.com

By: Dee

Dee — Wed, 26 Aug 2009 18:22:28 +0000

Just for your info,chemo is not given in brain tumour cases as it doesn’t not cross the blood brain barrier. My first mother-in-law had an adenocarcinoma on her frontal lobe. It was a secondary from a lung tumour 2 years previous. It was encapsulated,and easy to remove. She lived for many years… BUT no chemo. That is important to tell people.Doctors today need to educate themselves more. The common mistakes they make are pathetic and life threatening.

By: Chantal D G Wilby

Chantal D G Wilby — Wed, 26 Aug 2009 16:58:08 +0000

My address is
10 Laith Close Ireland Wood, Leeds West Yorkshire, UK, LS16 6LE